Extreme Excitement

It’s happening *again* and this shit show starts on my 29th birthday. On my 29th  birthday I stop taking the tablets that give me PMS and that should make my period arrive. I might even have a day of feeling OK to celebrate my birthday.

BONUS FACT: Chemical PMS has made me so angry that I broke my car door by slamming it. Haven’t told wifey. Totally didn’t know that was even a thing. I’m actually quite feeble since the surgery so it’s the last thing I was expecting.

picturev3-039.jpg
I honestly don’t know what happened, but it may have been something like this.

Yay! I’m starting on my birthday! How thrilling! My 28th birthday was embryo transfer #1, IVF cycle #2. That was a bust. The past year has been a bust.

99% chance the next month will be a bust too. YAY!!!

But, I digress. I got a call from a nurse last week. She was all peppy and upbeat and all that bullshit nurses are before they release you’re an old hat at this crap and they don’t need to pretend that you’re **going to have a cute widdle baby soon!!! OMG YASSS**

Because this was our first treatment at the new clinic, the nurses hadn’t gotten the memo about me being a cranky barren jaded bitch who does not want to hear their optimistic liar crap.

So, I got a call from a nurse last week. It was one of those upbeat calls where they tell you how *infinitely exciting* it is that you’ve started on your fertility journey with Dr X: Bullshit Fertility Shyster Extraordinaire.

Notice that a “fertility journey” isn’t really a journey. You probably won’t go anywhere except into a pool of debt. There’s no guarantee that you’ll get anything out of it… except that it’s invariably *exciting*. You will ruin your life… but you’ll be *incredibly excited* about the process.

Exciting
Thanks, IVF Australia. It sure is *exciting* when your staff are incompetent, your propaganda heteronormative and USELESS and your doctors more concerned with $$ than doing their jobs. (If only I understood my darn menstrual cycle!)

But, still, it’s refreshing to get the *exciting times* talk again. Just as it was refreshing to shut it down.

Big Kev
IVF nurses remind me of Big Kev. (International readers, Big Kev was an Australian weirdo who was very excited about cleaning products 20 years ago.)

I listened to the spiel. It was great. Those nurses would be great actors, I bet, because they do the talk with such conviction. *I* almost got excited about my fertility prospects. What an exhausting job they have!

“Yeah, look”, I said, when it had abated into a mild insistence that I take a day off work to travel for 6 hours to listen to some idiot nurse telling me how to inject myself with poison. “Can we forgo the part where you tell us how to use all the drugs? It’s just that this is our 6th IVF cycle and I guarantee we’ve heard it all before.”

As a new patient, I’m sure she expected me to be green as grass and *so excited about having a darling widdle cute baby !YAY PREGNANCY! OMG yass babYYYYY 😀 *.

She stopped rhapsodising about my forthcoming *extreme excitement* and simply said,

“Oh.” As in: “Oh. You’re fucked“.

“Oh.” As in: “Oh… 6 at your age… why are you even doing this? Are you crazy? You must be crazy.”

“Oh.” As in: “Oh. So you knew as well as I did that what’s about to happen is not in the least bit exciting so that whole charade was a waste of my time.”

I do wish this crap was over already. I rather just want to get started and get it over with, although I know wishing to be incredibly sick and to metaphorically flush money down the toilet is not something people traditionally look forward to.

But, perhaps, when it is over, I’ll have my answers. I’ll have satisfied my scientific mind with yet another experiment.

Aim: To analyse the impact of endometriosis on developing eggs and embryos.

Hypothesis: Regardless of the presence/absence of endometriosis, I am infertile AF.

I am SO EXCITED for the conclusion.

 

Next Stop: The Health Care Complaints Commission

Every time I tell someone about my experiences with IVF Australia and, more specifically, with doctor #1 (a.k.a Dr Douchbag), they have been incredulous. How can a doctor be that hopeless? That completely ignorant of the ramifications of his incompetence?

During our 6 month wait for donor sperm, (ex)friends (who turned out to be uberfertile, thus necessitating the discontinuation of the friendship, see TBH, I do hate uberfertiles) were going through the process at the same clinic (although, luckily for them, with another doctor). They were surprised that we had effectively been told to fuck off for 6 months. Their doctor had commissioned further tests like fallopian tube blockages (kinda relevant if you’re told you’re doing IUI) and had ordered fertility testing for both members of the partnership. Why not, when you’re waiting up to 10 months for sperm.

At the time, I believed there was nothing wrong with me, so I didn’t make a fuss. I just thought everything would be fine, although the complete lack of attention did strike me as odd.

I should have seen the warning signs. But, I just thought doctors knew what they were doing.

(What an idiot, right?)

I believe
My attitude to doctors, back when I was an innocent young fool.

A few months ago, a lawyer friend to whom I tearfully (and very drunkenly – no way I will talk about this shit otherwise) opened up to about this hell exclaimed,

“Oh my God! If you want to sue them, I’ll help you!”

(Lawyers, right?)

I reluctantly rehashed the experience to my psychologist who immediately recommended I make a formal complaint to the Health Care Complaints Commission.

So, that is what I am trying to do.

No one should have to go through what we went through. Furthermore, no queer couples should have to go through what we went through and I do firmly believe that has been a part of it. I honestly don’t think we would have been treated like this if we were a heterosexual couple. I don’t think doctor #1 had any interest in helping us get pregnant. A lot of his behavior was beyond ambivalent and was downright hinderous.

We should have been given our medical results. My concerns should have been taken seriously. Every other doctor we encountered seemed to see there was something very wrong. The more I read about others’ experiences in this, the more unfathomable it is to me that a doctor could tell a 27-year-old that after 3 IVF cycles, altogether yielding a *total* of one (pretty poor) blastocyst, that “there’s nothing wrong – do another cycle”.

What. The. Actual. Fuck?

Two weeks ago, I was reduced to tears after fighting IVF Australia for my medical records (and being denied them – no surprises there).

Last week, I cried my way through 2kg of IVF paperwork, looking for written proof of my story. They don’t like to give you much to go on. They don’t want any irrefutable evidence of their culpability. So, in addition to the buried memories that stack of paper unearthed, the exercise stirred a pesky voice that whispered:

“No one will believe you. You can’t fight them. They’re bigger than you.”

“Why did you ever trust them? You brought this on yourself. If you hadn’t have been so naive, they wouldn’t have taken advantage of you.”

WP_20180507_17_40_12_Pro.jpg
I’m not even exaggerating. It is 2kg. I weighed it. One day it will make a nice bonfire.

I can’t help but think that this is all my fault. Although physically, I now have a medical condition (endometriosis) to blame my barrenness on, I blame myself for my lack of action. Perhaps I should have stormed into the doctor’s office and demanded the results of my tests and then researched what the hell they all meant. What if I had called bullshit sooner and stopped blindly going along with more and more and more IVF? What if we had gone to two fertility clinics simultaneously, then maybe one of them would have been competent.

I don’t know how I am going to get through this, but what choice do I have? It’s not fair that I have to spend my days reliving this horrible experience. I never deserved it in the first place. It’s not fair, but the alternative is to lie down and take it and I WILL NOT be doing that, even if it kills me.

Some days I can’t believe it hasn’t.

For further reading on this thrilling topic, see my 2017 complaint to IVF Australia here:

One Year of TTC

Bad Hope

Here are the facts:

  • I’ve had the offensive parts of my insides peeled off.
  • Medically, I *should* be fertile (sure haven’t heard that shit from doctors before).
  • I’m expected to do that fucking IVF crap again.
giphy (1)
So now I’m fertile, am I?

Had the answer been the same shit, again:

*blah blah blah* *perfect health* *blah blah blah* *should be able to get pregnant* *peak fertility* *blah blah blah*

… there would have been an end. There would have been a closed door. I’m healthy, I’m infertile, and this is the end of the story. At least I have my health.

Ironically, the fact was that I was not completely healthy. Now that, apparently, I am, further medical intervention is sensible.

Sensible. Another life destroying, money wasting nightmare is a sensible choice for my wife and I.

A sixth fucking round of IVF is apparently sensible.

The one thing this crap is not is sensible.

This morning I was considering the topic of this post. These recent events have left me with a corrosive feeling in the pit of my stomach, and the only name I can find for it is hope.

Hope?

Hope is the wrong word for it, though, because hope implies something positive. Hope implies optimism and cheerfulness. This is not that. But what can you call poison hope like this? It’s a hope that feeds an addiction. It’s hope that drives to destruction. It’s the hope of a substance abuser that just a bit more of _____ will make everything better. Or the hope of a problem gambler that today has got to be a lucky day. It’s the hope of denial and it’s very bad hope.

Hope-is-being-able-to-see-that-there-is-light-despite-all-of-the-darkness.-Desmond-Tutu.jpg
Wisdom is knowing that the light is actually your house burning down.

It’s the force that drives us to do a 6th IVF cycle, even when we know deep down that it will just make things a lot worse. It will open up a half closed wound that grows more tender with every opening, and takes longer to heal. What drives people to do 10 or 20 rounds of IVF? Not common sense. Addiction and bad, toxic hope, that’s what.

My nerves rankle as I watch myself heedlessly shovel money into the pockets of fertility shysters. I know it is an addiction and I know it is time to stop. But… I’m twenty-fucking-eight. I have more than a decade left of watching people my age have kids. I’m twenty-fucking-eight and most of my friends haven’t started trying for kids. The unfairness of the situation drives the addiction as well. How can we give up yet? Sure, it’s been almost two years of fertility treatment. Sure, it’s been 5 rounds of IVF.

But what if the next time is different?

I could ramble on ceaselessly about fertility addiction and my experience with it, and about the bad hope propelling us towards cycle 6. However, I recommend this blog post; Child at heart: A brief look at ‘IVF addiction’  as a very good summary of various views on the topic and a source of further reading. I really couldn’t have said it better myself.

To quote a quote (I feel like a lazy undergrad) from the blog:

“If someone told you that you should bet $12,000, $15,000, even $20,000 on a horse that has a 5% or less chance of winning the race, you’d tell them to get lost, that’s crazy…Yet, IVF patients that go in for multiple rounds of IVF, beyond two or three are doing exactly that. Most clinics have pulled out all the stops, applied all the tricks they know by the third IVF cycle. If it still isn’t working, either the clinic is incompetent or IVF is not the right solution for that patient”.

And here we are on number 6. FML.

The Middlo

I made my mother take me to hospital. Wifey was busy at home. If there was nothing wrong with me, it was supposed to only take a few hours.

On the way to the hospital, she asked gently,

‘And what are you having done?’

‘I dunno.’

It sounds like a teenagerish thing to say but it was mostly accurate. I hadn’t elaborated on the medical situation. TBH, I was a bit annoyed at one of her assumptions when I had asked her to take me to the hospital for planned surgery day #1.

‘I had that surgery when I was your age. They inject dye into your fallopian tubes and look at them and then your wee is blue!’

I nodded, resisting the urge to query why on earth myself or any legitimate medical professional would be interested in the state of my thoroughly redundant fallopian tubes. I have never used them. I will never use them. I don’t even know if they exist and they would have been just as useful to me if they didn’t.

Having been denied the chance to explain once, I did not bother again. Then, having major doubts about the surgery going ahead, I didn’t even commit to mind what I had been told of the surgery months before.

We got to the hospital and I was taken to the little check in room to be questioned.

‘What are you having done today?’

Suddenly the answers of, ‘I dunno’, ‘Just wasting my money’ or ‘Just wanted to know if there’s a reason I can’t have kids’ seemed… inadequate. I wrenched a couple of words from the archives of my mind.

‘Hyss-ter-o-scop-ee and lap-er-o-scop-ee’, I enunciated slowly, adding quickly, ‘did I say that right?’

Apparently, I had sounded out the words correctly (phew). She must have seen my title (Dr) but she didn’t ask me if I was a medical doctor. That must have been *quite* clear. Hopefully, I had avoided looking like a complete dullard who shows up at hospital with no idea what they are doing there.

I was sent to get changed, put on silly stockings and some shitty thread-bare dressing gown. I was thankful that my period only lasts 48 hours, as I had to get naked and I did not want to explain that I was bleeding everywhere. Just like always, my little trickle of blood that started on Thursday morning was over and I didn’t have to negotiate nudity and some elaborate blood catching apparatus.

I lay in bed with my mum waiting for the doctor to arrive. As he had never worked at the hospital before, they suggested that I look out for him as they wouldn’t know what he looked like. 12 o’clock ticked by (at which the surgery was supposed to begin) and he still wasn’t here. I was getting pretty stressed by this stage, having paid my $7k, collected my worthless promises, and gotten all dressed up. What if the surgery got called off again. What if he just never showed up?

pexels-photo-127873.jpeg
Where the fuck are you, doctor?

I was so excited when he did show, I think I said something like,

‘You’re actually here!’

He didn’t seem concerned about being 5 minutes late. I was ready, after all, and, probably, so was he. We both had to sign a consent form (which was good because I still didn’t really know what was going on.)

‘So you know what’s happening?’

I nodded confidently. Again, ‘you’re going to see if there’s anything wrong with me’ sounded very childish.

‘And do you have any questions?’

‘I do’, my mother interjected. ‘Can you just tell me what is happening? She hasn’t actually told me anything.’

So, for my mother’s benefit but secretly for mine, doctor #3 explained the basics of a hysteroscopy and laparoscopy for the purposes of excising endometriosis. If I didn’t have endo, doctor #3 would take biopsies of everything and the whole thing would be over in less than 40 minutes and I would be free to go home in a few hours.

Fun fact: endometriosis is easiest to spot right after a period as the blood is fresh and it ‘lights up’. Timing, it seemed, was perfect.

‘And you think she has endometriosis?’

‘I am quite confident she has endometriosis.’

‘I’m not.’ I scoffed under my breath.

 

Just the Starto

A month ago, I mentioned I was about to have surgery to *hopefully* find out why this pregnancy thing is so unreasonable a prospect for my 28-year-old-purportedly-perfectly-healthy body.

https://cluckydykes.com/2018/03/10/waiting-for-endo/

That surgery didn’t happen. Doctor #3 is from a different state and there was a delay in finding a hospital in my state for him to operate. The details are not important. Suffice to say, I prepared for some very expensive, possibly useless surgery and organised my life around its occurring. The cancellation left me depressed for all the reasons that the fertility industry destroys my spirit.

Promises broken, misinformation, and complete disregard for how this circus effects my life. (The fertility circus, in my case, being an immensely consuming 3rd job that I do not have the time nor the emotional energy to endure.)

So, when the nurse called me the week after #surgeryfail with a *real* date for my surgery, I politely asked her to email me the details.

fertility fuckwits
Dealing with the fertility industry.

With no email forthcoming (*gasp*), I resigned myself to the fact that I had exhausted every fertility treatment option available.

As a same-sex couple, there is a total of 2 companies in my state that will treat my wife and I. We had tried both. We had tried 3 doctors. We had gone through 5 IVF cycles (the full stim cycles, not the stick-a-frozen-embryo-in-and-call-it-a-cycle IVF cycles that uberfertiles love to whinge about). Almost 2 years had elapsed since this nightmare started. That qualifies as trying, surely. So, I decided, if they contacted me about the surgery, I would go ahead with it and *theoretically* discover why I’m barren A.F. If not, I would put this baby business to bed.

The surgery was, after all, an expensive exercise in regret evasion. Wouldn’t I regret not knowing why I can’t have kids? Isn’t that knowledge worth $7k? (Don’t answer that – I realise most answers will not be like mine.)

Last Wednesday afternoon, I got a phone call from the same nurse asking me to send the consent forms back. I still had not received any emails or follow up phone calls regarding this supposed surgery date and the whole thing reeked of fertility industry incompetence (FII). If she wanted something signed she’d better email it to me. But she had, she insisted. Problem was, she said, most of her emails went to people’s spam folders. (Perhaps Gmail has a fancy filter to protect infertiles from FII.)

Dubiously, I checked my spam folder and there they were; 3 emails related to the surgery, dating back 3 weeks. Surgery was scheduled for Saturday, less than 3 days away. So, I just said I’d do it.

Why not, hey?

knowledge is power
The pursuit of knowledge can be used to justify many stupid decisions.

Waiting for Endo

In 5 days, I am having laparoscopic surgery to ascertain whether my faulty body has thwarted my attempts at pregnancy. Thus, I really hope I have severe asymptomatic endometriosis because at least then, I can have an answer. I can be told, ‘this is why you can’t have kids.’ I can understand why this has happened to me. I can give it a name and I can move on.

Two years ago, I can’t imagine hoping for a medical condition like I am now. Now I’m imagining the worst-case scenario as waking up from surgery and being told, “There’s nothing wrong with you. There is absolutely no reason why you shouldn’t be able to get pregnant.”

And that shit is getting real OLD.

Can you imagine, spending thousands of dollars on exploratory surgery just to find out that, as you have been told hundreds of times before, THERE IS NOTHING WRONG WITH YOU?

I can. In less than a week, it will probably be my reality.

I am, most likely, physically healthy in every way.

The thought is depressing AF.